Tuesday, April 24, 2012

Jack and Joe's Story

Jack & Joe
Age 5
Sanford Children's Hospital
Twin-to-Twin Transfusion Syndrome

Jack and Joe are two peas in a pod. As twins, they have many common characteristics, but one of the most prominent is courage.

Before they were born, Jack and Joe were diagnosed with twin-to-twin transfusion syndrome. Joe had decreased blood volume and delayed growth, while Jack suffered from overloaded blood and symptoms of heart failure. Even after surgery, the brothers battled for their lives.

At just 11 days old, Jack developed a serious blood infection, went into renal failure and nearly lost his battle. Joe was diagnosed with mild right hemiplegia and required physical therapy until he was 3 years old.

Now in elementary school, the boys have made significant progress. Joe is a hard worker who doesn’t give up easily despite his mild motor difficulties. In fact, he loves to play baseball and basketball. Jack is friendly and loves helping others. He loves to learn and has received an award at his school for his great efforts.

Children's Miracle Network Hospitals Champions

Champions is a Children's Miracle Network Hospitals program that brings attention to the important work being done at its 170 children’s hospitals. It does this by honoring 54 remarkable kids who have faced severe medical challenges, and helping them tell their stories.

The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.

The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups  convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.